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onethatcares

(16,578 posts)
Thu Jan 8, 2015, 05:29 PM Jan 2015

today they say it was a success

my wife was on the table for 7 hours while they removed the cholangiocarcinoma from her bile duct and removed the half of liver and gall bladder as the surgeons proposed. They cut away the cancerous section and re connected it to the small colon for drainage. No cancer is visible at this time. It looks like the chemo did what it was supposed to do.

I left while she was still under anesthesia but slowly coming out of it. I wouldn't leave without telling her I love her and that she was doing good.

The next 48 hours are pretty critical while we watch for infection or any other problems.

I have to say I am ecstatic and walking on sunshine right now.

I will keep you all posted and continue to pray and think the best thoughts for the outcomes for you all. You guys are my buds.

20 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
today they say it was a success (Original Post) onethatcares Jan 2015 OP
Keeping my fingers crossed that all goes well LiberalEsto Jan 2015 #1
That is wonderful news! Hope... YvonneCa Jan 2015 #2
exellent news...most exellent ! olddots Jan 2015 #3
Long surgery Ruby the Liberal Jan 2015 #4
Wonderful news and thanks for sharing it with us ... slipslidingaway Jan 2015 #5
Very hopeful news! sinkingfeeling Jan 2015 #6
Wow- that is wonderful news! KaryninMiami Jan 2015 #7
Today I visited onethatcares Jan 2015 #8
There is a good reason for that Ruby the Liberal Jan 2015 #9
It's true- after my transplant, it was all about getting up and around KaryninMiami Jan 2015 #10
Mine was ice cream Ruby the Liberal Jan 2015 #13
Great docs and the surgeons should know any pitfalls of moving around ... slipslidingaway Jan 2015 #11
oh yeah, there is not going to be any of that onethatcares Jan 2015 #12
All in all sounds pretty good ... slipslidingaway Jan 2015 #14
I worry more about onethatcares Jan 2015 #15
Great that she's being discharged! KaryninMiami Jan 2015 #16
Wonderful news about being discharged ... slipslidingaway Jan 2015 #17
Wonderful news! cpamomfromtexas Jan 2019 #18
It's been a long road onethatcares Jan 2019 #19
great news! JHan Jan 2019 #20

slipslidingaway

(21,210 posts)
5. Wonderful news and thanks for sharing it with us ...
Fri Jan 9, 2015, 12:47 AM
Jan 2015

and we all hope the next 48 hours go by without any complications.

On another note about your other thread on care at home. Have you or your wife set up a caringbridge or carepages site where you can post updates to share with family or friends? By just posting what is ahead and what needs to be done sometimes offers come from people you might not have thought of asking.

It can be a 'gentle' way of asking for help from a variety of people, you might be surprised at the acquaintances or more distant family members that could step up to help. It only takes one or two people to make a difference and worth a shot.

Best wishes for a full recovery



KaryninMiami

(3,073 posts)
7. Wow- that is wonderful news!
Fri Jan 9, 2015, 04:08 PM
Jan 2015

What an ordeal and what an amazing operation! So happy to hear it was a success. Hope you are having a celebration somewhere (with or without booze) and allowing yourself to rest and enjoy this moment.

onethatcares

(16,578 posts)
8. Today I visited
Fri Jan 9, 2015, 04:50 PM
Jan 2015

right at the same time two members of the surgeons staff came into her room. They asked how long she was in bed and proceeded to get her out of bed to walk a few steps to a regular chair in order to sit up straight. Seems the surgeon believes in movement and healing and none of his patients are going to lay around in bed for a few days of R&R if he can help it.

Sounds good to me.

They told her she would only be in ICU for one more day and then moved to a regular room. Physical therapy will commence as soon as she is settled in.

She is doing good, which is what counts and the sooner she can come home the better in my book.

THANKS AGAIN,EVERY ONE OF YOU.

Ruby the Liberal

(26,321 posts)
9. There is a good reason for that
Sat Jan 10, 2015, 05:08 AM
Jan 2015

A surgery that intense (especially abdominal) can put the body at risk for blood clots that can lead to a pulmonary embolism. Thats why they need her up and moving - to keep any blood clots from forming. Mostly in her legs. They will likely tell you to have her up and walking for 30 seconds to a minute every hour once she is back home. She won't want to (Lord knows I fought it with everything I had), but as arduous (and painful) as it can be, it is really, really important.

She is fortunate to have you there to help her with this.

KaryninMiami

(3,073 posts)
10. It's true- after my transplant, it was all about getting up and around
Sat Jan 10, 2015, 12:56 PM
Jan 2015

And many days it was not easy or fun. I also did my best as soon as I got out of bed, to stay out of bed in the lounge chair in the room. Plus walking twice a day back and fourth in the hallway (with my trusty IV pole at my side). Moving as much as possible and as soon as possible makes a huge difference in the healing process. So did the Tootsie pops someone brought me by the way...

Ruby the Liberal

(26,321 posts)
13. Mine was ice cream
Tue Jan 13, 2015, 08:21 PM
Jan 2015

The dialudid they had me on was horrific. It made me SO nauseous after a while that I couldn't eat - and you have to eat to take it. Catch 22. After several weeks, I didn't want to move, much less walk. Knowing I needed to eat in order to take another of those blasted pills, I set a goal that I couldn't take a pain pill until I had walked once every hour for 4 hours - then ice cream.

slipslidingaway

(21,210 posts)
11. Great docs and the surgeons should know any pitfalls of moving around ...
Mon Jan 12, 2015, 12:47 AM
Jan 2015

being in bed produces more time in bed. Use whatever is available, physical therapy visits, alternative medicine such as massage that might be available.

This will also make a smoother transition when she comes home ... keep moving!

onethatcares

(16,578 posts)
12. oh yeah, there is not going to be any of that
Mon Jan 12, 2015, 05:44 PM
Jan 2015

sitting in bed stuff. The only problem that she's had so far is that they stopped using the dilauda for pain meds and gave her something through her IV tube that didn't really help her with the pain, which I imagine is pretty intense or a 8 on a 10 scale. She didn't sleep very well last night so back on the "d" today helped her a bit. They are working towards a quick kick out of the hospital, but I don't think it's going to be earlier than Friday this week for some reason.

That 30 seconds to a minute every hour makes a lot of sense and I'll keep that in mind. Thanks

slipslidingaway

(21,210 posts)
14. All in all sounds pretty good ...
Wed Jan 14, 2015, 10:22 PM
Jan 2015

just use the drugs needed to get past this period and make sure she has everything needed for home (pain, nausea, sleep meds) when needed.

Just getting home is such a sigh of relief in some ways and challenging in others.

Not sure where the 30 seconds to a minute every hour came from ... but someone who gave you that tip is thanking you



onethatcares

(16,578 posts)
15. I worry more about
Thu Jan 15, 2015, 06:06 AM
Jan 2015

panic attacks. She had two real bad ones after they did her liver embolism and stent install. Hopefully, the docs prescribe a smoother to keep her from over thinking this.

She should be discharged today. In fact as I type this the docs are probably making their rounds prior to surgery and will give her the boot.

the 30 -60 seconds per hour makes sense. if you add up the time it's like 8 minutes of walking every 8 hours on the long side. Even if it's 4 minutes it allows for movement of muscles.

KaryninMiami

(3,073 posts)
16. Great that she's being discharged!
Thu Jan 15, 2015, 03:33 PM
Jan 2015

Hopefully by now you are on your way home-such great news that she's being released! Can they perhaps prescribe Xanax for the panic attacks? Also, Marinol (synthetic marijuana pills) may help as well if they will prescribe them for you. I found them very helpful while in the hospital. And, there's a wonderful internet station and also an app - calm.com which I found to be tremendously calming. I put on my headphones, close my eyes, take deep breaths and get lost in the music (also great for meditation).
Keep us posted on how things are going please!

slipslidingaway

(21,210 posts)
17. Wonderful news about being discharged ...
Sat Jan 17, 2015, 12:22 AM
Jan 2015

enjoy being home and relax a bit, take it slow and let her build her strength. Hopefully they gave her something to take the edge off if needed.

Little by little and yes small amounts of exercise are great ... and they do add up



onethatcares

(16,578 posts)
19. It's been a long road
Tue Jan 1, 2019, 01:04 PM
Jan 2019

In April of 2019 she'll have been cancer free 5 years. Free of a cancer that usually kills quickly. They've even changed the name of it from CholangialCarcenoma to some other thing.

She's walking 10K steps a day, going to the Y and living her life again.

Hopefully it keeps up.

Thanks for posting, I look back and realize just how lucky she was.

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