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alfredo

(60,135 posts)
Sun Feb 14, 2016, 01:24 PM Feb 2016

I have joined the big C club. Melanoma in the neck.

Seven weeks of radiation therapy starts soon. Wednesday I get my PET scan. The 25th I get a biopsy on my Larynx, then 10 day later I see Hematology/oncology.

They say I am a good candidate, and that it was caught early. They also say I could lose my salivary glands and temporarily my taste buds.

Any tips, pointers, bad jokes?

46 replies = new reply since forum marked as read
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I have joined the big C club. Melanoma in the neck. (Original Post) alfredo Feb 2016 OP
oregon health sciences has a ton of money right now mgmaggiemg Feb 2016 #1
Thanks alfredo Feb 2016 #2
super...keep us posted ;) mgmaggiemg Feb 2016 #3
Will do. alfredo Feb 2016 #10
I won't say welcome, but this is a great group with wonderful people Solly Mack Feb 2016 #4
It's still early, and I have questions and concerns. alfredo Feb 2016 #7
Well, that's gotta be a shocker, for sure. dixiegrrrrl Feb 2016 #5
No, but this is a state with a lot of farmers. alfredo Feb 2016 #8
It's a good thing that you've found this group on DU. auntAgonist Feb 2016 #6
Thanks. Solly Mack urged me to join you guys. She's been a big help. alfredo Feb 2016 #9
if I'm alive you can do this olddots Feb 2016 #11
My right side parotid gland is kaput. I was told it would never function again. Solly Mack Feb 2016 #12
There hasn't been any therapy yet, but I will ask a lot of questions at the oncologist visit. alfredo Feb 2016 #24
I do therapy for my lymphatic fluid, but then I had 31 lymph nodes removed. Solly Mack Feb 2016 #25
Synthroid? I have noticed a low grade sore throat. Might as well get used to it. alfredo Feb 2016 #26
I didn't ask for a drug by name so much as asked if there were any. Solly Mack Feb 2016 #27
L-thyroxin is a Thyroid replacement drug. My wife has been on it most of her life. alfredo Feb 2016 #28
I was speaking of things that are supposed to help protect the thyroid during treatment. Solly Mack Feb 2016 #29
I understand. Off to bed for me. PET scan in the morning. alfredo Feb 2016 #30
I just declared that whatever it is, I will deal with it. alfredo Feb 2016 #13
Technical question Tab Feb 2016 #33
Humidifier. alfredo Feb 2016 #44
Wishing you the best, although the best would be that never you found this forum ... slipslidingaway Feb 2016 #14
Thanks. I am staying positive, and I have a good family to support me. alfredo Feb 2016 #15
Wonderful that you have a great support system and attitude ... slipslidingaway Feb 2016 #31
Thanks. It's 6:30 AM, those are groggy steps. alfredo Feb 2016 #32
And a sense of humor will serve you well ... slipslidingaway Feb 2016 #35
My Zoloft dosage has been increased. alfredo Feb 2016 #36
Well we do not want that sense of humor to be dampened! Ativan was the drug of choice ... slipslidingaway Feb 2016 #37
I'll do anything I need, and I have friends to help me. alfredo Feb 2016 #38
You are on your way, be a good patient, but not too good to question! I think too often docs ... slipslidingaway Feb 2016 #39
My wife had oral surgery this week, that gave a good test run. alfredo Feb 2016 #40
Wife's are wonderful ... slipslidingaway Feb 2016 #41
She's been my rock for the past 35 years. alfredo Feb 2016 #42
Welcome to the Big C Club!! Tab Feb 2016 #16
Hello, and thanks. What should I wear to the PET? alfredo Feb 2016 #17
Nothing with metal, although I'm not sure that was a requirement or just remnants from the MRI days Tab Feb 2016 #18
I will wear my sweat pants, then pick up some coffee and a scone on my way out. alfredo Feb 2016 #19
There you go! Tab Feb 2016 #20
Thanks. I've taken on the attitude, "I'll deal with it." alfredo Feb 2016 #22
dress warm olddots Feb 2016 #21
I've got plenty cold weather shirts. I will dress in light layers. alfredo Feb 2016 #23
They usually offer you a warm blanket though Tab Feb 2016 #34
The warm blanket was a nice touch. alfredo Feb 2016 #43
When do you get your results? Tab Feb 2016 #45
No idea. I get the feeding tube and a biopsy next week. They will contact me. alfredo Feb 2016 #46

mgmaggiemg

(869 posts)
1. oregon health sciences has a ton of money right now
Sun Feb 14, 2016, 01:47 PM
Feb 2016

for all sorts of cancer stuff going on in both research and treatment....a cancer doctor was on "city club" the other night on the radio explaining about it...so don't know where you are but I would look into whats available at OHS also you can get on line and compare research/clinic trials/treatments from other countries...(like france) that are required to publish science research online because their countries have socialized health care....you can find this research in english.....so just go on line country to country....you never know if someone is doing something different that might help, best of luck to you positive love and light....the less stress and blame you put on yourself the more you allow your body to heal...don't let the bureaucracy of it get to you and allow others to do things for you....really remove yourself from the negative stuff of busy everyday life and focus on the beauty and enjoying the moment....life is not for sissies....focus on having a good process as you can possibly have and be an optimist....look for cancer support groups locally or online...I'm sure there are both....so you don't feel alone... Cheers, Maggie....let us all know how it's going....feel free to complain...

alfredo

(60,135 posts)
2. Thanks
Sun Feb 14, 2016, 02:04 PM
Feb 2016

I am being treated by VA, with the help of the Markey Cancer Center. They are very experienced dealing with my type of cancer.

The financial side is no bother. It will be free.

My wife went through radiation therapy, so she will be a big help. It wasn't cancer, but she knows how to navigate the usual BS.

Solly Mack

(92,819 posts)
4. I won't say welcome, but this is a great group with wonderful people
Sun Feb 14, 2016, 02:19 PM
Feb 2016

who have been, and still are, in your shoes.



alfredo

(60,135 posts)
7. It's still early, and I have questions and concerns.
Sun Feb 14, 2016, 03:03 PM
Feb 2016

I am supposed to work the polls in mid May. I hope I can do it.

dixiegrrrrl

(60,011 posts)
5. Well, that's gotta be a shocker, for sure.
Sun Feb 14, 2016, 02:20 PM
Feb 2016

By now you have talked to the docs and asked them what outcomes are.
But still...hearing the word does tend to make your heart leap and give ya the cold clammies for a bit.

Are you in a legal marijuana environment?

auntAgonist

(17,257 posts)
6. It's a good thing that you've found this group on DU.
Sun Feb 14, 2016, 02:31 PM
Feb 2016

I've observed and felt the caring and genuine nurturing that goes on here.

I wish you all the best as you embark on this (often) frightening journey.

Having said that, Welcome to the group. I'm sorry you are now a card carrying member.

aA
kesha

 

olddots

(10,237 posts)
11. if I'm alive you can do this
Sun Feb 14, 2016, 04:13 PM
Feb 2016

ask the doctors questions even when you can barely speak ask the guestions you need answered .

Get a dehumidifyer ,your throat will be trashed and partched but I swear it gets better , your taste buds will return and your saliva will too but you are going to have to drink lots of water for ever which means you will have to pee alot which is boring but beats dying .
What kept me alive was a cheesy portable c.d. player and some real head phones , comfortable ones .I listened to classical music because it goes well with the pain drugs that wipe you out .The hardest thing to do is not feel bad about feeling bad ,give yourself a break especially in recovery .Your mind will go chemo brain on you ,memory loss etc.... but you'll get it back .
tell the docs how you actually feel instead of stroking their egos , they a specialistics who lack bed side manner because of modern consumer medicine practices .
Join a cancer group because you will feel very alone in this and the cancer guilt thing needs talking about .Don't get scanziety because you get used to being poked and put thru absurd sci fi machines , last of all you might just say cancer was the best thing that ever happened to me because you realize we live till we die which sounds really dopey but its true .
H

Solly Mack

(92,819 posts)
12. My right side parotid gland is kaput. I was told it would never function again.
Sun Feb 14, 2016, 05:24 PM
Feb 2016

The remainder of my glands, the left parotid, under the tongue and the submandibular barely function.

The reason I'm telling you this is because I have a question - did your doctor do anything special to protect your glands?

My tumor was also next to my right side parotid. Not on it or in it, just next to it.

My surgeon did what he could to relocate for drainage/excretion (parotid duct), and I could still produce saliva after surgery and prior to radiation.

After radiation, very little.

But if your doctor knew something that could help alfredo, then that would be great!

I know everyone is different, but every little bit helps.



Solly Mack

(92,819 posts)
25. I do therapy for my lymphatic fluid, but then I had 31 lymph nodes removed.
Tue Feb 16, 2016, 07:11 PM
Feb 2016

Makes a huge difference - having those nodes and not having them.

Ask your doctor anything and everything that comes to mind. I know there are pills to help protect the thyroid, but after weighing it all with my doctor, I opted against them.


Solly Mack

(92,819 posts)
27. I didn't ask for a drug by name so much as asked if there were any.
Tue Feb 16, 2016, 10:06 PM
Feb 2016

My doctor sort of laughed when I asked about drugs to help protect my thyroid. He saw the look on my face and answered seriously.

He said nothing really protected it. I'd either have problems or I wouldn't. Problems with the thyroid affect roughly a third of people who receive radiation treatment to the neck region. I do remember that number. But truly, other people might have had different results.

My doctor did say he would prescribe them if I really wanted to take them. The decision was mine.

My radiation treatment was some of the best and provided greater control of radiation hitting the areas it needed to hit. They explained the machine and the process to me fully. When treatment changed, to different areas, I got another explanation. When they changed to protons, I got another explanation. My cancer doctors were named in the Top 10 of cancer centers in the country, so I feel good about them.

Still, though, I'm getting my thyroid tested next week. Blood test can show if my thyroid is under-active.

alfredo

(60,135 posts)
28. L-thyroxin is a Thyroid replacement drug. My wife has been on it most of her life.
Tue Feb 16, 2016, 10:24 PM
Feb 2016

I chose the Markey Cancer Center because it is good, and because it works with the VA.

Solly Mack

(92,819 posts)
29. I was speaking of things that are supposed to help protect the thyroid during treatment.
Tue Feb 16, 2016, 10:29 PM
Feb 2016

There are several drugs for thyroid hormone replacement for after treatment, if the need arises.

alfredo

(60,135 posts)
13. I just declared that whatever it is, I will deal with it.
Sun Feb 14, 2016, 06:30 PM
Feb 2016

I suffered Crohn's, but now I am clear of that. I will beat Cancer too.

My dad died of cancer because he waited too long to get help. I am not my father.

Tab

(11,093 posts)
33. Technical question
Wed Feb 17, 2016, 04:17 PM
Feb 2016

Do you mean a dehuimidifier, or a humidifier? The first takes moisture out of the air, the second injects it.

slipslidingaway

(21,210 posts)
14. Wishing you the best, although the best would be that never you found this forum ...
Sun Feb 14, 2016, 11:00 PM
Feb 2016

not familiar with your type of cancer and each type of cancer has something foreign to others that have the 'big C.'

This is a great group, but I would encourage you or a loved one to seek out specific groups and also second opinions, ask questions. Stay informed without becoming crazy. I see below you have a positive attitude and that counts!



alfredo

(60,135 posts)
15. Thanks. I am staying positive, and I have a good family to support me.
Mon Feb 15, 2016, 07:28 AM
Feb 2016

I have six family members on my wife's side and one on my side of the family that are either doctors or nurses. So far they say I am making the right choices.

I know it will become real when they put the feeding tube in and nuke my neck.

slipslidingaway

(21,210 posts)
31. Wonderful that you have a great support system and attitude ...
Tue Feb 16, 2016, 11:55 PM
Feb 2016

good luck with the scan tomorrow!!!

Step by step



slipslidingaway

(21,210 posts)
35. And a sense of humor will serve you well ...
Wed Feb 17, 2016, 06:46 PM
Feb 2016

hope it was not too bad, but mostly wish for the best results possible.

slipslidingaway

(21,210 posts)
37. Well we do not want that sense of humor to be dampened! Ativan was the drug of choice ...
Wed Feb 17, 2016, 10:36 PM
Feb 2016

think it has 6 'anti' somethings Including anxiety and nausea.

As the first transplant doc said to my husband, a few days after being locked into a room for a month +, we have many drugs to get you through this period, use whatever you need to get through!

Just get past this time, use what it takes ... and that includes asking others to do for you or a loved one. Do not be afraid to ask, I think people are hesitate and few are adept at anticipating needs.







slipslidingaway

(21,210 posts)
39. You are on your way, be a good patient, but not too good to question! I think too often docs ...
Wed Feb 17, 2016, 11:20 PM
Feb 2016

look at numbers to see if you are in the 'range' and fail to look at the trend, my husband has a blood cancer (MDS that led to AML and has undergone two bone marrow transplants) so I am all about trends in labs. I realize others are in a different situation and have other tests which I do not understand.

Our daughter is an internal med doc and I know she studied very hard and cannot even begin to tell you that I could not have memorized all those binders that were under her bed! But sometimes we just need to look at OUR picture. She is not going to micro manage her Dad's treatment, she is not an oncologist, not too mention a transplant doctor, and they have such different standards as we have learned over time. I cannot tell you how many times I have asked for another lab test to be included which led to a change in medication.

Stay involved and Question, but not so much as to get bogged down in every detail, BUT let someone else do that for you. Remain determined and keep that sense of humor, that is your job.









alfredo

(60,135 posts)
40. My wife had oral surgery this week, that gave a good test run.
Wed Feb 17, 2016, 11:41 PM
Feb 2016

We tested different liquid meals. They suck, but it's temporary.

Tab

(11,093 posts)
16. Welcome to the Big C Club!!
Mon Feb 15, 2016, 01:59 PM
Feb 2016

Some of us are temporary members, some are permanent.

I don't have melanoma, so I don't have specific advice. I did know someone without salivary glands and they just kept a bottle of water with them at all times.

You are in the right place - you can post anytime, many members will let you PM them (ask first) but I'll at least say you can PM me, and if you want a phone number you can ask for that.

Also, do you have a spouse/significant other or a family member that would have questions? This forum is not restricted to the patients themselves. Everybody is involved.

Best of luck with the PET scan. I've had at least 10 of those, so if you have any questions, I could at least answer those - what to expect, how the process is, etc. Main thing is they inject you with a radioactive marker and you have to be quiet for about 45 minutes in a chair and let it circulate before the scan starts. They're much quicker and easier than MRIs. You might want to bring a music CD with you. Not all of them can pipe music into the scanner, but many can, and if it helps you, bring one and ask. If you're diabetic, your sugars need to be reasonable (<250), but that's about it. They don't want you to work your brain too much while you're resting - preferably no crosswords or internet or whatever. The main reason is they measure the difference in sugar uptakes, and excessive brain activity changes that.

I do have bad jokes. They're not cancer related, though.

- Tab

On edit: Can't help myself. Worst joke I can think of...

Q: Which came first, the chicken or the egg?
Answer: The chicken, because the chicken had to get laid before the egg did.

Let that serve you right for asking about bad jokes.

Tab

(11,093 posts)
18. Nothing with metal, although I'm not sure that was a requirement or just remnants from the MRI days
Mon Feb 15, 2016, 05:01 PM
Feb 2016

If I was going in tomorrow, I'd have soft pants, a t-shirt, and I'd leave my glasses and wallet and phone on the chair or something. I don't recall ever having to put on a gown or anything.

Tab

(11,093 posts)
20. There you go!
Mon Feb 15, 2016, 11:49 PM
Feb 2016

The hospital I have has the most excellent oatmeal raisin cookies.

It's not a scary thing. In fact, I prefer it over an MRI (they tell you different things anyway). I just try to chill and relax, do the crosswords or listen to music while I was waiting (although on my last visit they wanted me to cut it out and just not engage in any mental stimulation). But it's over relatively quickly.

Main thing is you have to stay away from pregnant women and babies for the next 24 hours. Wasn't an issue for me, but may or may not be for you. That's it.

They'll even (usually) give you a CD of your scan results while you wait after (probably varies by hospital).

I assume if there's something critical they'll call you immediately, otherwise you just wait for the results.

Warning, if you're new to this: Stop speculating on outcomes, you're likely wrong, and don't look up and take to heart the stuff you read on the Internet. It rarely gives you the warm and fuzzies.

Let us know what happened,

Best!

- Tab

alfredo

(60,135 posts)
22. Thanks. I've taken on the attitude, "I'll deal with it."
Tue Feb 16, 2016, 11:41 AM
Feb 2016

They just called and said I can wear what I want, just no metal buttons on my shirt.

Tab

(11,093 posts)
34. They usually offer you a warm blanket though
Wed Feb 17, 2016, 04:22 PM
Feb 2016

Can't speak for every radiology center, but that's my experience.

Tab

(11,093 posts)
45. When do you get your results?
Thu Feb 18, 2016, 07:40 PM
Feb 2016

Obviously the techs won't usually tell you anything (some will, but most won't).

alfredo

(60,135 posts)
46. No idea. I get the feeding tube and a biopsy next week. They will contact me.
Thu Feb 18, 2016, 10:36 PM
Feb 2016

The VA is good about that.

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