Deaf/Hard of Hearing
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Yesterday I picked up my new hearing aids. First off, my thanks to the peeps in this forum who shared experience and advice. For those who've had devices a long time, you may not remember just how daunting the process of learning you have hearing loss, deciding what to do about it, and obtaining good help, can be. Even so, many of you stepped up and I really leaned into your knowledge and reassurance.
And now my world is BIG again.
I read many descriptions of the experience of hearing with assistive devices - not all good. In fact, one that stayed with me was "Hearing aids help you hear the way a walker helps you dance."
First let me describe my experience - when the receivers went in I was suddenly aware of a whole soundscape that had been occluded, maybe for years, I don't know how long my hearing loss has been slowly and imperceptibly progressing.
Air movement and ventilation fan noise and crowd noise suddenly came in the open door to the booth in the Costco Hearing Aid Center. Then I felt very YOUNG again, college age, with a memory of being in a rehearsal booth in the music department... where did THAT come from? And I realized I was wearing a mask and I could hear my own breathing, the way I used to in those anechoic booths.
Holy crap.
I just sat there, listening... little electronic noises. The chair squeaking. The audio tech's keyboard tapping. The sound from outside.
She glanced over at me, caught the look on my face. "They're working, right?"
Oh, my. Were they ever.
Did you ever watch those teevee shows from the 1950s that were all shot in the studio, but they had sets that represented the outdoors? "Mister Ed" comes to mind, and some others.
The difference I am experiencing is like the difference between the soundscape of those "outdoor" sets, captured in the soundtrack, and being actually outdoors with air moving, birds chatting, cars passing, an aircraft high overhead, pine branches whispering and a hundred other ambient sounds.
I came home and listened to music. The piccolos! The triangle! The harp glissandos go all the way up! I am like a kid in a candy store.
Another thing I noticed: A sudden relaxation, like shedding tight, uncomfortable clothing. What was that about?
I had read that one effect of hearing loss is increased anxiety and fatigue, merely from the increased effort of listening. My hearing loss isn't that bad - mild in some parts of the spectrum, moderate in the high frequency ranges - so I didn't think that applied to me.
Wrong, wrong, wrong.
That ever-so-slight tensing up, that unconscious effort in the presence of sound, WAS affecting me. And now it's gone.
I could dance, I could float... I'm like a younger me again.
Is there a downside? It's not like "natural" hearing, though, right? Why do people say they have so much trouble adjusting to hearing devices?
In order: Yes - I'm temporarily way more conscious of sounds my brain used to naturally de-prioritize, when younger me could hear them as a matter of course. They startle me a bit, grab my attention more than I like. I am told that my brain will re-learn to relegate them to its version of 'background' noise, and this will become less acute as I adjust. I hope so.
No, the sound the receiver renders isn't like "natural" hearing, it's more like a soundtrack- but an exquisitely layered, rendered and balanced soundtrack. I'll take it. It is such an enormous improvement over my "natural" impaired hearing - and my brain can no longer supply an accurate impression of what my "natural" youthful hearing was really like in any great detail. So I am not regretting it.
And, I think there are several reasons people might have a lot of trouble adjusting to hearing devices. The obvious ones relate to the quality of the technology and the match between what you need and what a particular type of device offers in the way of configuration, fit, sound rendering, etc. Of course you'll resist adjustment to a badly-fitting or poorly calibrated/programmed device.
But I think there's also another reason. I'm not an audiologist or researcher, this is just my opinion, but I do have experience observing others in my family, from childhood up, coping with our hereditary hearing loss. And I think one thing that makes adjustment difficult is waiting too long to get help.
We know a lot more about auditory deprivation and its effects now, than we used to. Cumulative effects from hearing being an effortful rather than effortless process can produce anxiety, depression, isolation. And maybe if you get too used to that 'dead air' soundscape, your brain reacts to the experience of a vastly expanded soundscape with confusion, rejection, and more annoyance and anxiety at the effort of parsing it into something meaningful?
So, note to my younger self: Don't wait, you'll be glad you didn't put it off another year.
And to anyone who has hereditary hearing loss in your family - start getting your hearing tested early! When loss manifests, don't wait until it gets "bad", because you think you'll "lose" something by replacing the experience of "natural" hearing.
Life is playing its glorious music...
gratefully,
Bright
DavidDvorkin
(19,890 posts)tblue37
(66,035 posts)You might enjoy some of the articles I have posted on my deaf/Hard of hearing website. Most of my articles are humorous, but some are serious.
I'm Listening as Hard as I Can!
http://deafnotdumb.homestead.com/articleindex.html
TygrBright
(20,987 posts)tblue37
(66,035 posts)3Hotdogs
(13,398 posts)SheltieLover
(59,610 posts)So happy for you!
I'm a bit crowd deaf, but I don't think they can do much to help with that yet. Not very likely to be n a busy restaurant anytime soon which was the only time this was bothersome. This not only makes it difficult to hear, but distorts sounds so that a person might not have said what I thought I heard. 😓
So I can somewhat imagine your joy!
Enjoy!
ShazzieB
(18,670 posts)I have been wearing hearing aids for about 15 years now, and you'd be amazed at how sophisticated the technology has gotten! My hearing loss hasn't changed much, but my hearing has noticeably improved with each set of hearing aids I've had (I'm now on my third), due to improvements in the technology.
First of all, there are two types of hearing aids: analog and digital. All an analog hearing aid can do is make everything louder. This is helpful for some, but for a lot of us, it wouldn't help much.
Digital hearing aids, otoh, are computerized and calibrated to magnify only the sounds the wearer need to have magnified. For example, my hearing loss is mostly in the upper registers (higher pitched sounds), so my hearing aids are programmed to boost sounds in those registers, without making low-pitched sounds louder.
Also (and I don't claim to understand how this works, lol), some digital hearing aids have multiple settings for different kinds of situations. I'm no good at explaining how the technology works, but hearing are some links that my help:
https://www.hopkinsmedicine.org/health/conditions-and-diseases/hearing-loss/how-do-hearing-aids-work
https://www.healthyhearing.com/report/41066-Hearing-aids-background-noise
SheltieLover
(59,610 posts)Very encouraging, but, no doubt, ridiculously expensive.
Ty for the links! Off to read!
ShazzieB
(18,670 posts)vanlassie
(5,899 posts)I experienced a miracle when at age 63 I went to start the hearing aid process for one ear that had a 50% reduction, and found out that it was a repairable problem! My stapes was calcified! I received a prosthetic stapes and after about two weeks, after the inflammation reduced, my hearing suddenly returned as I was driving to work one morning! Boom! Miracle! By the way, the stapes replacement was covered as a medical procedure because it was not simple age related hearing loss. Just an outpatient copayment.
Im almost 70 now, and I have some more normal loss which qualifies me to start looking into aids again. Your insights are useful!
IbogaProject
(3,652 posts)It's important to not turn it up too much, as the loss will continue and worsen if you go beyond what is needed. It is a delicate balance between just enough and too much.
Best wishes. And if your problem is hereditary research cochlear implants, so you know what to do if this keeps progressing. My mom's eye doctor (funny how he had best advice) commented on how it changed lives for some of his very deaf clients.
JudyM
(29,517 posts)with her hearing aids. We tried different kinds of external speakers and the technician created a music setting she could switch over to, but nothing works. She loved classical and just cant listen to it, so its great you can still enjoy it.
TygrBright
(20,987 posts)I'm also a classical music fan, and I think the spectrum and dynamics profile of classical music is different from many types of popular music.
I haven't yet had the chance to hear live music, so I have no comparison, but so far the recorded music I'm listening to renders very satisfactorily.
I hope your Mom can find a solution!
appreciatively,
Bright
momta
(4,108 posts)...from working on an oil pipeline in the 1930's through 50's. No ear protection in those days. Unfortunately his hearing aides were rudimentary. My memories are from the 70's and 80's before the technology got better. His aides would often give feedback, and my grandmother would yell at him to turn them off. It was frustrating for both of them.
I wish they had had better aides in those days. I would love to have had a real conversation with him.
I'm so happy for you that you won't have to have those problems. Congrats!
Riverman100
(283 posts)This gave me the courage to go forward with mine
MLAA
(18,602 posts)Just motivated me to talk to husband about getting a hearing appointment!
mgardener
(1,895 posts)3catwoman3
(25,441 posts)How interesting that hearing loss is fatiguing.
Old Crank
(4,647 posts)One hearing aid and one Cochlear implant. They are very different beasts.
The hearing aid is very normal from my perspective. The implant is different and the sounds are more like a bad speaker.
That being said, my testing shows that my hearing is better with both units on than either one by themselves. You will need to learn to hear again with the implant. I got my implant in Germany so most of my therapy was auf Deutsch.... as well as the testing. Fun stuff.
There are some things which respond differently. My microwave oven I can hear without aids when I'm in the kitchen and mostly all over the house with the aids. My clothes and dishwasher can be heard with the implant only. But it seems less sensitive for other things. I think the devices help each other out.
Enjoy your new hearing.
Higherarky
(637 posts)Last edited Thu Sep 15, 2022, 09:28 PM - Edit history (1)
Today, I discovered this forum. I appreciate this essay you've composed.
I lost most of my hearing after a severe six-week supperative otitis; externa, media, and interna. It obliterated my tympanic membranes. I lived in a silent world. Several months later, I underwent autologous TM graft placements. When the healing had completed its course, I could hear again, albeit faintly.
When I got my first audio-assistive devices, to me it was like "The Wizard of Oz" when Dorothy landed in Oz and the film went from black-and-white to technicolor! Wondrous!! When I removed them at night before going to bed, I plunged into the silent world again.
Anyway, I've since had a couple other pairs. Right now I use Phonek devices, and I find them very user-friendly with the Phonak app. I enjoy being able to adjust the graphic equalization and the ability to have "sound-surround" or narrow the focus, among other features.
Anyway, this evening, as I was sitting outside, I needed to take them out for a moment. Sudden silence. Couldn't hear the night critters chirping, couldn't hear my wind chimes. I was reminded how fortunate we are that technology has made such great strides in this area.
I feel a bit of connection with you, since you are a musician, and I am as well. My deafness has forced me to cut short my career, but I am very grateful that I can at least enjoy being able to hear the world of sound & music again. It may not be perfect, but it beats complete silence any day!
So, I thank you for taking the time to share your opening post. It's a challenge being hearing-impaired, and while I wish we weren't, it's comforting to know I'm not alone.
Truly,
Higherarky
Hugzzzz
TygrBright
(20,987 posts)It's good to know that something I shared was helpful/meaningful/connected with someone else.
I know what you mean about 'the silence at night'... when I take my devices out before going to bed, it's like putting on earmuffs... the deadening/flattening of the soundscape.
Recently my sleep pattern has changed - I find myself waking sometime between midnight and 2 am, and staying wakeful for anywhere from a few minutes to an hour. One thing that helps is to go out on the porch and walk and look up at the sky. The other night, on a whim, I put in my devices before going out, and the whole night soundscape came alive again. This time of year it's crickets, an occasional dog barking, the neighborhood windchimes, the (intentionally) muffled clang of our own chime (it's designed to sound like a 'gong buoy' and it's pretty loud, we muffle it from consideration for the neighbors), the wind in the trees. It's a reminder that the night has a life of its own.
Then I came in, put my devices in their charging case (aren't rechargeables AMAZING? I am SO glad not to have to fumble with batteries and/or worry about running out...) and was able to drop off again quite soon.
One thing I've noticed is that I seem to be much more conscious of the 'anchoring' role of beat and percussion in music - I suspect the devices find that easiest to render? Anyway, I often catch myself doing percussion riffs - not exactly beatboxing but 'feeling' the rhythm a lot. I think that's one of the things that comes with hearing loss for some people.
appreciatively,
Bright