You are correct, mine was HER-2 positive. I'm at the end of treatment now, though.
I read that about 15% of port "installations" cause blood clots. They put me on a blood thinner. Right now, I don't know whether it caused any side effects...maybe my runny nose and mild nosebleeds? I do have a new bright blue vein running horizontally, on the lower part of my breast (on the port side, where I still have a breast). My surgeon said that is the body finding its path for blood flow.
I now have just two Herceptins left! I got an OK to go back to my chiropractor, and I have a very good feeling that that's going to help with my hip pain. I also plan to look into physical therapy; I'm going to have a hip MRI first.
I can make an appointment to have the port removed one month after the last infusion, and my doctor agreed that I can stop the blood thinner at that point. I still don't have a clear understanding of how the blood clot just goes away, but of course I'll try to get that clarified. Then reconstruction -- can't wait for that. I have a very bizarre-looking area, with extra skin left there for that purpose. It's gross.
So, some very good progress for me. It looks like this might all be finished by the close of the year. I've also gotten my diet under control (damn, but I went a little crazy when my taste buds came back), and my daughter's been such a good influence on me...tons of fresh veggies and wild-caught seafood. I'd like to be at my "happy weight" for reconstruction...about five pounds to go.
Daughter leaves next Monday and this house is going to be SO quiet after having a lively young person here to cook, sew, argue, laugh, discuss with.
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