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polly7

(20,582 posts) Mon Jun 2, 2014, 12:52 PM Jun 2014

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This message was self-deleted by its author (Original Post) polly7 Jun 2014 OP

There goes the Toronto Sun's Joe Shlabotnik Jun 2014 #1

I'm glad they finally came up with a deal laundry_queen Jun 2014 #2

Joe Shlabotnik

(5,604 posts)

1. There goes the Toronto Sun's

Reply to polly7 (Original post)

Mon Jun 2, 2014, 01:05 PM

Jun 2014

favorite cover story. Well, actually they get to praise the Alberta provincial government for one story, and then we'll never hear about Madi Vanstone again.

laundry_queen

(8,646 posts)

2. I'm glad they finally came up with a deal

Reply to polly7 (Original post)

Mon Jun 2, 2014, 02:43 PM

Jun 2014

This drug is revolutionary for CF because it fixes the underlying defect instead of just treating symptoms, and while right now it only treats one mutation, more drugs are in the pipeline to hopefully treat the most common mutation. The reason Kalydeco is so costly is because there are so few people who require it (only 4% of CFers have the mutation it treats), and a lot of money was put into research. Personally, I think when drugs like this are being researched that governments should put in more research money so that the drugs can be more affordable. This drug is a lot like the discovery of insulin was for diabetes - it is unconscionable that some people are going without due to $$$.