Antiscience and ethical concerns associated with advocacy of Lyme disease.

[kickysnana]

Auwaerter PG, Bakken JS, Dattwyler RJ, Dumler JS, Halperin JJ, McSweegan E, Nadelman RB, O'Connell S, Shapiro ED, Sood SK, Steere AC, Weinstein A, Wormser GP.

http://www.ncbi.nlm.nih.gov/pubmed/21867956

"Similar to other antiscience groups, these advocates have created a pseudoscientific and alternative selection of practitioners, research, and publications and have coordinated public protests, accused opponents of both corruption and conspiracy, and spurred legislative efforts to subvert evidence-based medicine and peer-reviewed science. The relations and actions of some activists, medical practitioners, and commercial bodies involved in Lyme disease advocacy pose a threat to public health."

This is a direct retaliation for this because it was proved that what he is accusing activists of doing is what his organization was found guilty of in a court of law.

Attorney General's Investigation Reveals Flawed Lyme Disease Guideline Process, IDSA Agrees To Reassess Guidelines, Install Independent Arbiter
http://www.ct.gov/ag/cwp/view.asp?a=2795&q=414284

Blumenthal's findings include the following:

The IDSA failed to conduct a conflicts of interest review for any of the panelists prior to their appointment to the 2006 Lyme disease guideline panel;

Subsequent disclosures demonstrate that several of the 2006 Lyme disease panelists had conflicts of interest;

The IDSA failed to follow its own procedures for appointing the 2006 panel chairman and members, enabling the chairman, who held a bias regarding the existence of chronic Lyme, to handpick a likeminded panel without scrutiny by or formal approval of the IDSA's oversight committee;

The IDSA's 2000 and 2006 Lyme disease panels refused to accept or meaningfully consider information regarding the existence of chronic Lyme disease, once removing a panelist from the 2000 panel who dissented from the group's position on chronic Lyme disease to achieve "consensus";

The IDSA blocked appointment of scientists and physicians with divergent views on chronic Lyme who sought to serve on the 2006 guidelines panel by informing them that the panel was fully staffed, even though it was later expanded;

The IDSA portrayed another medical association's Lyme disease guidelines as corroborating its own when it knew that the two panels shared several authors, including the chairmen of both groups, and were working on guidelines at the same time. In allowing its panelists to serve on both groups at the same time, IDSA violated its own conflicts of interest policy.

This should send chills down your spine "Similar to other antiscience groups,". Because it means that if the self appointed scientists engage in the above and you try to stop them you are a terrorist. Terrorists in America can be murdered, held without trial and counsel indefinitely and all your property can be confiscated. Advocates have already lost custody of the their children in some cases for seeking treatment for a chronic, debilitating disease the ISDA says really does not exist and Lyme Disease itself needs minimal treatment.

I have seen with my own eyes people and especially children who were confined to bed, unable to do work or schoolwork get non-standard treatment and get on with their lives. Recovery takes months not days.I also have read about people including children who remained in the same condition indefinitely or got worse and died because doctors hands are tied by the IDSA guidelines, insurance companies and managed care.

How can this be happening here in 2012 in America?

[hedgehog]

1. If you look to the right hand of the page you linked to,

you'll see several other articles listed that support or oppose the theory of chronic Lyme disease. I'd say the issue is still open for discussion.

[kickysnana]

2. Not if you or someone you love has it. That is how we get our doctors and researchers.

This is a case of the emperor's new clothes. The science is in, Chronic lyme exsists and responds to treatment, this group is paid to ignore what doesn't fit their narrative, a business model, a backlash to the AIDS movement, a threat to germ warfare (Tuskeekee and then Plum Island after WWII), a threat to the bottom line of insurance companies.

When the bribes and political pressure could not shut up the scientists and doctors who were believing their eyes and science in NY. Glaxco-Kline-Welcom pulled their world headquarters out of NY State into Massachusetts ca 2000. A national Conference in Michigan was held ca 1993 after Congressional Hearings which pitted the Democrats (Kennedy) against the Republicans Since the tests for Lyme could only detect less than 50% of blood borne Lyme Disease and Lyme Disease becomes deep tissue (like latent syphilis) in 6 weeks to 6 months they could not tell if their LymeRix vaccine worked or not. It has already been shown that using the protein they used caused an incurable devastating autoimmune arthritis in up to 30% if people and that it reaction was genetic in origin and could be detected but no provisions were made to test people before vaccination nor was there any real followup to testing nor the roll out of the vaccine. Since those tests would test positive for vaccinated people they dumbed down the tests so that at most Lyme was detected in only 28-32% of infected samples sent out for testing by the CDC. You could flip an coin and get a better chance of getting the test right because again after time the tests no longer detected antibody reaction in the blood but the disease was still active. Lyme is or at least was before 2008 as a bio weapon by DOD. Meaning they were the control on all Lyme Research in the US and extended their "help" into what could be explored into other countries by 2001.

In 1993 an insurance actuary who's family member had Lyme came and spoke to our Support Group and he said that the Insurance companies already knew that Lyme was more expensive than AIDS because we outlived AIDS victims and were at least 75% as disabled/debilitated as they were (or a later study people with chronic heart failure) and regular insurance companies did not want to pay but if they withheld secondary treatment people were totally disabled and on public health plans before 24 months so that was their plan. Two camps. Victims that want truth and help; and corrupt doctors and politicians, scientists; insurance people, managed care (ALDS).

Their answer is that after 1993 that powerful camps answer to Lyme was go home and suffer and die and for some reason we thought that we would not and for that they now are calling us terrorists for fighting legally within the system.

The horrible vaccine, that nobody could prove worked and made so many people ill was how they were going to manage Lyme. How ingrained in our society did this become? Mayo Clinic does not treat chronic Lyme despite proof of ongoing infection. They were the first to be granted permission to do a post LymeRix Lyme Test based on the bad criteria outlined above. Despite mountains of peer reviewed work and despite a lot of junk science on the part of the other side Mayo still does not treat chronic Lyme and there test detects Lyme 26% less than subsequent tests and they still tout it as "the gold standard" because it is from Mayo

If they can do this what can't they do and to what group of Americans sick or not?

One of board members of the IDSA was also the head of the infectious disease department of the Duluth Clinic. When the science came out to prove persistence some people who were denied treatment attempted to sue and found out that each and every medical case lawyer in the area had been retained by Duluth clinic for some minor thing and then threatened if they took on this Lyme Case. When one suit finally made it into court with a Twin Cities lawyer who did not do his homework the case was heard the last session before Christmas and the defense said "These people are crazy your honor, there are tests for Lyme" The victims lawyer did not have the science at hand so mumbled something and the judges said OK, charges dismissed giving this guy the OK to go ahead let people suffer die when adequate treatment is available to either cure or maintain health in victims and wiping out 7 years of hard daily work by many dedicated people here with the MN Health Department and the State Legislature. Doctors can be sued but HMOs have limited liability by law.

The lack results with antibiotics was a study by Dr Steere who was one of the first sell out to the corrupt group in which he took a group of patients who had had previous treatment and treated them with a smaller dose for a lesser amount of time and then ended the study early and declared that people were not getting better. That was what this study, paid for with tax dollars was designed to do.

A study that was done by the US government in a Canadian research facility designed to study treatment and persistence, based on limited earlier US research, a few years earlier which treated victims with enough antibiotics for enough time showed just the opposite and that study was never formally released and the people in it were under a contractual gag order. The actual results leaked out through family members of the group and those lesser folks who were not under the gag order because they thought this was so very, very wrong to be happening.

I was unable to get adequate treatment for Lyme in Minnesota from 1994-2009 when the legislature was convinced to let a 5 year study go forward here. With treatment I can remember and type these things. Without treatment within 30 days I cannot care for myself, remember my phone number or pin number, if I need a shower or if I have an appointment today even though I l may have remembered to look at the calendar in the morning because I have neurolyme, most common in MN and WI.

So the controversy has nothing to do with science and health, and everything to do with money and corruption. Is this what you want to see happening?

[hedgehog]

4. I very strongly suspect that Chronic Lyme Disease is an

autoimmune disease triggered by the bacillus that remains even after the bacillus is cleared. The symptoms and the controversy echo those of the Chronic Fatigue saga. This is not to say the disease isn't real, but scientists are going to have to go beyond the simple model of infection. It doesn't help that so many of the symptoms are subjective. Too many in medicine don't believe in anything that can't be quantified by a lab test.

There was some research twenty years back suggesting that Rheumatoid arthritis was triggered by a specific infection, but no one has seen the source because the virus or bacteria is cleared by the body before the autoimmune reaction kicks in. This was speculative, but the evidence was that RA was found in pre-Columbian America, but not seen in Europe until about 1600 when it was reported as a new, epidemic disease!

It's very possible that antibiotics do help even if it is an autoimmune disease. I use a topical antibiotic to keep my rosacea in control. Another antibiotic is used to treat the dry eyes of Sjorgen's syndrome.

[mopinko]

7. my docs think that my fibro was kicked off by west nile.

some of the symptoms i have always had- painful joints that are not red or swollen, difficulty recovering from joint injuries. but the fatigue and the constant pain started after i had west nile 10 years ago.

[KMDickson]

3. Auwaerter, Yale and IDSA on "Lyme Disease"

You are correct to recognize this "AntiScience" assault on science as offense being the best defense for IDSA's crimes. It is IDSA who have performed the fraudulent science starting with the the current CDC diagnostic standard ("Dearborn&quot .

All of IDSA's other -isms are based on this Dearborn lie. But of course, these unscientific fraudsters can't tell us what was the structure/function of OspA was. Go ahead and call anyone at Yale, IDSA, Auwaerter, the NIH, NIAID, or the CDC and ask for the structure of the molecule they called a vaccine, OspA. They will tell you they do not know.

And that is because what OspA is, is the disease. It is the immunosuppression outcomes formerly known and reported by IDSA as the New Great Imitator (MS, Lupus, Cancer, ALS, strokes). IDSA is scared to death not only what what happens to baby-killers in prison, but their reputations. Notice that they get no more funding.

For how many years can you make a claim that such and such a disease is not a disease and expect to get a grant to study it?

Don't be frightened by IDSA's hysterical response to the world recognizing their intellectual incompetence. That's all this is. They're pariahs.


http://www.actionlyme.org

[tickedoff]

5. Comprehensive information about lyme as an MSIDS: Multi System Infectious Disease Syndrom

Watch Dr.H - about 23 minutes into the video. Exceptional information about lyme, why it is so hard to treat and comprehensive treatment suggestions.

http://www.livestream.com/skidmorevideo/video?clipId=pla_6e766799-727a-467e-872f-c1936459b2bf&utm_source=lslibrary&utm_medium=ui-thumb

[kickysnana]

6. Thanks I hadn't seen this one. n/t