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slightlv

(4,243 posts)
Thu Mar 23, 2023, 07:14 PM Mar 2023

I'm at my wit's end this week.

It's been up and down with temps and rain, and I know that's the main thing that brings on my fibromyalgia pain. But I've never had it this bad before. Imagine breaking your bone, and that's what my joints feel like. Earlier this week, it was every main joint in my body, both sides. I've managed to hang in there and it's down to being one side of my body screaming at me the most now... my right. It's so bad, I even googled to make sure I wasn't missing something important, like a stroke or something.

I'm not in a pot-ok state, and my hydrocodone meds weren't even taking the edge off this. Besides, I'm close enough to the "end of the month" that I'm afraid I'll have more month than pills at this point. I did take a sneak over to the state next to me and found a salve that I thought was the answer to all my prayers.

Within minutes of applying it to any hot spot that hot spot was hot no more... as long as it was a hot spot of pain caused by sciatica, scoliosis, or osteoarthritis. It even managed to kill the minor fibro pain. But even it can't keep up with the stuff going on right now. I'm a believer, and before this hit, was advocating for getting it legalized here. Legalization should be one of those no-question "duh" responses from anyone, especially after what I experienced. Keeping it illegal is keeping people in pain when they could be living lives without pain... and without any effects of smoking it. Gods... people can be so cruel by being so damned self-righteous.

Pain scales don't take into account this level of pain I have right now, and I have nothing in my repertoire to counteract it. I'm reaching out to anyone here on DU with chronic physical pain, no matter the reason, for help. The only thing else I've been doing is knocking myself out with tylenol PM to try to stay unconscious as much as possible. I'm not asking for expert help... but I know all of us chronic pain sufferers have our "tricks and ways" we use to try to beat back the worst of it. I'm just up against the point where I've been through everything in my book... and reaching out to try anything else. We have more rain coming in tonight.
Thank you...

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jimfields33

(18,602 posts)
1. Walking the pool everyday works for me. Just go around the parts you can walk for an hour a day.
Thu Mar 23, 2023, 07:33 PM
Mar 2023

I know weather outside won’t allow for it so the Y is the best place or somewhere similar. You’ll be surprised how much better you’ll feel in a short time.

emulatorloo

(45,544 posts)
3. Have you had your inflammation markers checked lately? I had a fibromyalgia diagnosis but
Thu Mar 23, 2023, 07:52 PM
Mar 2023

I started having symptoms 2 years ago of constant extreme joint pain like you. Turned out I had developed an autoimmune disorder.

Not trying to diagnose you, but could be something to check.

P.S. When I did have fibromyalgia, Duloxetine (Cymbalta) really helped keep the fibro pain in check.

https://en.wikipedia.org/wiki/Duloxetine

Warpy

(113,130 posts)
4. If the topical stuff was CBD only, no THC content
Thu Mar 23, 2023, 08:52 PM
Mar 2023

it's perfectly legal to mail order it, that's what I did before NM told the godly to sit down and shut up and made it all legal for recreation, which means no more hoops to jump through. My jumping days are over. If the stuff has THC in it, try some without, see what happens.

Roller coaster weather does mess with our bodies, especially if we've got some sort of autoimmune thing going on. I'm always far worse in spring and fall, at least when we get them.

The problem with fibro is that staying inert is probably the worst thing you can do. The best thing is to take your pain med, wait until you feel a tiny bit better, then get under a hot shower and start doing slow stretches. Lower the water temperature as soon as you can and keep doing slow stretches until you start to feel a bit looser. Yeah, I know, it sucks that the last thing you want to do when you hurt with fibro is the thing you should be doing.

MLAA

(18,571 posts)
5. All I have to offer is an over the counter item and a supplement
Thu Mar 23, 2023, 09:26 PM
Mar 2023

Stop Pain roll on pain relief. Dad use to swear by it and I didn’t believe it could be that good until he gave me one. It helped me with joint pain.

Lions Mane a supplement by Fungi Perfecto: https://fungi.com/products/lions-mane-capsules
I originally ordered it for memory after seeing a documentary, but after taking it a couple months all the arthritis pain in my fingers completely disappeared! From extreme pain to nothing.

Sending you hugs and good vibes

slightlv

(4,243 posts)
6. I'm thankful to say the rains did NOT roll in
Fri Mar 24, 2023, 03:41 PM
Mar 2023

last night. The Universe saw fit to give me a break. For those who asked, I DO have an autoimmune disease... I have fibromyalgia. I also, depending on my inflammation numbers, stay within the edges of SLE Lupus. I'm on meds for both, but during the days when the rains come, nothing seems to help. I'd been doing everything I could, both medicinally and on my own with foods and supplements, to get my inflammation down, but for some reason this weather front defeated everything I tried. I have no idea why. It's not like it was a gully washer or anything! Those have me trying to keep the rain from coming in the backdoor! (LOL)

I do a lot of cooking, my husband recently discovered, that involves anti-inflammatory spices. He just thought it tasted really good!

The salve I tried was 1:1 pot and cbd and I, personally, declare it a miracle drug... even if it couldn't stand up to the fibro pain I was feeling last week. That's why I'm so incensed that what someone can buy legally in a wonderfully helpful environment for their pain is denied to someone 5 miles from me who is suffering. That is so not fair! God help Kansas. I've said it more than once. On their license plates it should read, "If someone is smiling, they're obviously doing something illegal."

If only SS and my pittance of an annuity was enough, I'd walk out of this house, shut the door, and move to a blue state in a heartbeat. I have no doubt, holistically, my medical care would be better... and it'd be nice to be surrounded by like-minds.

So, for now, the pain is down to the level the salve has taken that away and I'm actually thinking of getting up and cleaning the kitchen. More rain isn't forecast until later next week, so I'll just go slow and hang on 'til then and see what happens.

For now... may you have sunny skies above you, and hopefully you have a hint of warm spring breezes. I know I'm sure looking forward to them, even with the pollen they carry. Right now, I'm going to go check on the progress of the growth of my daisies in the front yard!

Thank you for being here last night. I truly didn't know how I was going to get thru it one more night...

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