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icymist

(15,888 posts)
Sat Jul 15, 2023, 02:14 PM Jul 2023

I'm going to get a TEE on Wednesday and I'm a bit scared.

Some history: I had a TVAR back in June, 2019. A TVAR is having a heart valve replaced by inserting it through an artery from a thigh. It seemed to be working for the next couple of years. The heart murmur came back last winter. My doctor tried to treat this with an extreme blood thinner. This caused coffee ground (color) stool so it was discontinued. The TEE involves having a camera inserted through the esophagus which gives a clearer picture of the heart. I will be drugged.

I fear my end is near. Every day it is getting harder and harder to perform even basic activities of daily living. I am constantly short of breath, but my oxygen saturation is always above 95% on room air. This is about as bad as I've ever felt.

Being on the DU since 2004, I've seen a lot. I've grown to appreciate all of us here and how Skinner, EarlG, and Elad have created an extremely special place. There's nothing else like it on the web.

46 replies = new reply since forum marked as read
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I'm going to get a TEE on Wednesday and I'm a bit scared. (Original Post) icymist Jul 2023 OP
The docs will MOMFUDSKI Jul 2023 #1
Thank you. icymist Jul 2023 #6
Icymist, we are all sending our best hopes prayers, and vibes for you. irisblue Jul 2023 #2
Thank you. icymist Jul 2023 #5
You have a color of candle you favor? I ask permission to light one for you irisblue Jul 2023 #9
Of course you may. icymist Jul 2023 #10
From what I know about color meanings, green is the color of health and healing. calimary Jul 2023 #43
Here's wishing you best of luck on this. Doctors are amazing I had Walleye Jul 2023 #3
Thank you. icymist Jul 2023 #7
Sending vibes and love. Will be thinking of you on Wednesday. ms liberty Jul 2023 #4
Thank you. icymist Jul 2023 #8
Best health tool... MiHale Jul 2023 #11
Thank you. icymist Jul 2023 #12
Oh icymist, just imagine all of us on DU going with you calimary Jul 2023 #13
The TEE is just a test to try and see what's wrong. icymist Jul 2023 #17
I'm keeping all fingers crossed calimary Jul 2023 #21
Ditto! ancianita Jul 2023 #30
All the best to you Wild blueberry Jul 2023 #14
Thank you. icymist Jul 2023 #15
And wearing as much green as possible! calimary Jul 2023 #22
Best wishes and hope that it helps. BoomaofBandM Jul 2023 #16
Thank you. icymist Jul 2023 #19
You and I will be around forever, Hamlette Jul 2023 #18
Thank you. icymist Jul 2023 #20
All the best to you, icymist Hekate Jul 2023 #23
Thank you Hekate. icymist Jul 2023 #24
I hope that you find enjoyment in whatever time you have. Botany Jul 2023 #25
It is Amazing What They Can Do Nightowl Jul 2023 #26
Thank you. icymist Jul 2023 #27
I wish you the best cate94 Jul 2023 #28
Thank you. icymist Jul 2023 #29
A TEE (transesophageal echocardiogram) is a wonderful tool. TNNurse Jul 2023 #31
Sending love Delphinus Jul 2023 #32
Icymist you are a DU trooper and will come through this with flying colors. Fla Dem Jul 2023 #33
Hoping for the best! Solly Mack Jul 2023 #34
Nope, nope, nope. Your end is NOT near. The doctors will figure it out and you will be good to go LoisB Jul 2023 #35
All the best to you.. hope the procedure goes well mountain grammy Jul 2023 #36
Sending strength democrank Jul 2023 #37
Good luck yankee87 Jul 2023 #38
I'll tell you what a good doc told me years ago BaronChocula Jul 2023 #39
Sending you the very best! KarenS Jul 2023 #40
... Faux pas Jul 2023 #41
They'll wheel you in, give you medication Warpy Jul 2023 #42
Stay encouraged, icymist. littlemissmartypants Jul 2023 #44
I am home now. The tests are all done. icymist Jul 2023 #45
My medical condition has deteriorated. icymist Aug 2023 #46

irisblue

(34,253 posts)
2. Icymist, we are all sending our best hopes prayers, and vibes for you.
Sat Jul 15, 2023, 02:30 PM
Jul 2023

Wil someone be able to let us know you are doing after our study is complete?

calimary

(84,306 posts)
43. From what I know about color meanings, green is the color of health and healing.
Sun Jul 16, 2023, 01:05 AM
Jul 2023

And renewal, and new growth, and Spring!

It's a perfect color for this.

Walleye

(35,661 posts)
3. Here's wishing you best of luck on this. Doctors are amazing I had
Sat Jul 15, 2023, 02:31 PM
Jul 2023

Visually assisted thoracic surgery and it went very well it involves putting a camera like you described. I agree with what you say about DU. Feel better

MiHale

(10,777 posts)
11. Best health tool...
Sat Jul 15, 2023, 03:46 PM
Jul 2023

is a positive attitude. My wallet has a special card section for all my “artificial add-ons”. I laugh about them all the time. Keep smiling, and please take the breathing exercises they’ll give you seriously.

Waiting to read more of your posts in the future.

calimary

(84,306 posts)
13. Oh icymist, just imagine all of us on DU going with you
Sat Jul 15, 2023, 03:48 PM
Jul 2023

to your appointment and waiting for word from your doctor(s) that all went well and you are on the road to RECOVERY! Cuz that’s where we’ll all be on Wednesday, at least figuratively-speaking!

Hugs and healthy healing thoughts streaming out toward you right now and throughout!

We’ll be waiting to hear.

calimary

(84,306 posts)
21. I'm keeping all fingers crossed
Sat Jul 15, 2023, 03:57 PM
Jul 2023

so hopefully I’ll be forgiven if my posting here looks funny (or noticeably weirder than it already is)!

BoomaofBandM

(1,922 posts)
16. Best wishes and hope that it helps.
Sat Jul 15, 2023, 03:51 PM
Jul 2023

I have some health issues, one being asthma. The air quality has been brutal and temps pretty warm in my neck of the woods. Breathing definitely affected. It is very scary to not be able to catch your breath and feel weak. Sending positive thoughts and hope for a way to ease your discomfort. Good luck.

Hamlette

(15,531 posts)
18. You and I will be around forever,
Sat Jul 15, 2023, 03:53 PM
Jul 2023

remember, only the good die young.

I'm sure you'll be fine. All my best.

Botany

(72,475 posts)
25. I hope that you find enjoyment in whatever time you have.
Sat Jul 15, 2023, 04:08 PM
Jul 2023

Besides we all get to see the best President of my lifetime in Joe Biden and the Master Class on being POTUS he is giving right now.

Nightowl

(77 posts)
26. It is Amazing What They Can Do
Sat Jul 15, 2023, 04:19 PM
Jul 2023

Now to keep us healthy. You will be in my prayers and I am wishing all the best for you.

TNNurse

(7,121 posts)
31. A TEE (transesophageal echocardiogram) is a wonderful tool.
Sat Jul 15, 2023, 04:33 PM
Jul 2023

When the cardiologists at our hospital were learning to do them, my husband the CCU nurse volunteered for practice. I watched. I did not volunteer. It does give the doc a great view of your heart valves.

You will have a great nap during the procedure, like for a colonoscopy, and when you are awake, they will have info.

Hope it is good news, but shortness of breath is scary and irritating.

Please give us an update.

Delphinus

(12,143 posts)
32. Sending love
Sat Jul 15, 2023, 04:34 PM
Jul 2023

and healing vibes your way. May your doctors find a solution so that you come back to your best self.

Fla Dem

(25,682 posts)
33. Icymist you are a DU trooper and will come through this with flying colors.
Sat Jul 15, 2023, 04:36 PM
Jul 2023

All my best wishes your Dr will see what's going on in your in your heart and will have a course of action to get your heart functioning again as it should to give you a good life.

LoisB

(8,643 posts)
35. Nope, nope, nope. Your end is NOT near. The doctors will figure it out and you will be good to go
Sat Jul 15, 2023, 04:42 PM
Jul 2023

for a number of more years. Sending hugs and positive vibes to you.

yankee87

(2,340 posts)
38. Good luck
Sat Jul 15, 2023, 05:00 PM
Jul 2023

My beautiful wife just had a heart valve replacement surgery and it went well.
There is always hope.

BaronChocula

(2,517 posts)
39. I'll tell you what a good doc told me years ago
Sat Jul 15, 2023, 05:13 PM
Jul 2023

after not being able to get my blood pressure under control. I was getting a little edgy having different meds switched out year after year and I was concerned that nothing would ever work. He told me "seek comfort in the fact that you are actively in treatment though you might be discouraged with the progress, but we'll keep working at it." It did sort of calm me down and it put things into perspective.

It sounds like you are listening to your docs which is good. Keep it up. We'll stay positive for you here at DU.

Warpy

(113,130 posts)
42. They'll wheel you in, give you medication
Sat Jul 15, 2023, 09:57 PM
Jul 2023

and you'll ask them when it starts. They'll tell you it's all over. Really.

I just hope you get good news, that it can be managed short of a total valve replacement. Those work very well, they just ruin your life for a few weeks when you're recovering from surgery.

littlemissmartypants

(25,483 posts)
44. Stay encouraged, icymist.
Sun Jul 16, 2023, 01:16 AM
Jul 2023

I'll be burning sage, banging my drum and shouting out to the universe on you behalf. We love you. ❤️

icymist

(15,888 posts)
45. I am home now. The tests are all done.
Thu Jul 20, 2023, 11:51 AM
Jul 2023

The problems that called for the test still persist. I am waiting for consultations from my doctors. Being really drugged out of my mind yesterday I went right to bed we got home. What people see in enjoyment of being drugged like that is beyond me. I still feel a bit out of it.

I want to thank everyone for their well wishes and encouraging sentiment.

icymist

(15,888 posts)
46. My medical condition has deteriorated.
Tue Aug 1, 2023, 10:42 PM
Aug 2023

I'm going in for some blood draws to prepare for open heart surgery tomorrow. I saw the doctor's instructions and I may go directly to the ER. Sorry for the short notice. I wanted to be sure what was happening first. In case the worst happens, it's been fun, interesting, and wonderful being here with you all. DU rocks!

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