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Locut0s

(6,154 posts)
Sun Dec 15, 2013, 06:18 AM Dec 2013

SSRI discontinuation syndrome, for anyone taking them...

Cross posted from The Lounge.

The net is rather full of a lot of paranoid hate against SSRIs in general. There are a LOT of horror stories out there about people trying to come off them. A lot of this stems from them being horribly over prescribed for the wrong reasons. Like antibiotics, they should be used sparingly and for the right reason. And even then they often don't work. Though they save the lives of many for whom they do. People who had a normal breakup with their GF should not be put on prozac. Many of those who have in these cases found that going off them proved difficult and had a lot of negative side effects. Thus they have a rather undeserved horrible reputation. But the discontinuation side effects are real. You are recommended to taper slowly.

The psych I'm seeing now sort of suggested I might better off not being on them. I've been on SSRIs of one form or another for years and they never did much for me. Instead he does talk therapy and I think we may be making some small progress though I'm still in a pretty dark place. Anyway he didn't mention anything about the discontinuation, and infact seems rather ignorant of anything to do with meds. But that's neither here nor there. I knew myself that coming off them you are supposed to taper. However in the past I'd gone off them very rapidly with little consequence. This time I tapered off them in 1 1/2 weeks, far faster than normally recommended, because of my previous experience of having no issues. Now I'm feeling the effects.

In the literature it's called SSRI discontinuation syndrome, and while not usually serious can be very uncomfortable. Last week or more I've felt like I have a bad flu. Hot body, freezing hands and feet, I shiver and shudder a lot, I get night sweats and generally sweat a lot more. I feel generally ill and sick, very very much like a bad flu. I also have slightly numb finger tips. There are other odd feelings that are hard to categorize. My moods are also all over the map, I seem to cry at the drop of a hat for many things. One common withdrawl effect I don't have are the famous "brain zaps", feeling like electric shocks in your brain . But I'm very obviously not as flat as when I was on them. In fact I feel slightly more motivated and happy at times, though pretty desperate at others. All of these symptoms DO fall under the syndrome, but they also could be a sing of something else. I went to a clinic and the DR seems to think it's not likely something else which is good. I'll have to make a more formal appointment with my GP to make sure. So far I can handle this, just barely, if things don't get worse I'll just tough it out. If they do I'll have to go back on a small dose.

Just a warning to anyone who IS on an SSRI or thinking of going on one. If you want to go off them make sure to taper slowly. Slower than I did. Don't be afraid to go on them for major emotional issues either, they CAN save lives. Just be aware of the side effects and how to properly taper.

6 replies = new reply since forum marked as read
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SSRI discontinuation syndrome, for anyone taking them... (Original Post) Locut0s Dec 2013 OP
This message was self-deleted by its author HereSince1628 Dec 2013 #1
Understood thanks. Locut0s Dec 2013 #2
I once quit highest recommended dose Effexor cold turkey. hunter Dec 2013 #3
Thanks hunter. Yeah that doesn't sound like it was fun... Locut0s Dec 2013 #4
i quit effexor cold turkey, too fizzgig Jan 2014 #6
I got off Effexor XR annm4peace Jan 2014 #5

Response to Locut0s (Original post)

hunter

(38,936 posts)
3. I once quit highest recommended dose Effexor cold turkey.
Mon Dec 16, 2013, 02:07 PM
Dec 2013

Not one of my more brilliant accomplishments...

No, really. Don't ever do that...

No, just don't. Discontinuation syndrome is a very real thing....

Great public service announcement, Locut0s. Thanks!

It's so frustrating there's no "magic pill" for these things, no lab test, no x-ray. There's often a lot of hunting around for something that works and it's not always meds.

Searching for the answer is a better path than not searching. I'm certain your posts here are helpful to other people on similar quests, maybe people who'd never post here in this group.

As a side note, anti-depressants are sometimes the way bipolar disorders are discovered, after they've set off a manic phase.

These are not drugs to use incautiously, or without some kind of social safety net when you begin to take them or when you stop taking them.


Locut0s

(6,154 posts)
4. Thanks hunter. Yeah that doesn't sound like it was fun...
Mon Dec 16, 2013, 08:26 PM
Dec 2013


The reason there is no magic pill is that psychiatrists are working largely blind. They know that for some reason a certain percentage of people respond very well to one SSRI or another. But they have no idea which ones will work for which patient or indeed if any will. They have very little understanding of how they work either. The good psychiatrists will come clean with you about this. They will tell you "this is going to be a long road. We are going to have to try a number of different meds and I can't promise you which one will work, but in time I hope we will discover one that will". The best ones will also suggest other therapies to go along with the meds. I myself have never met a really good one. In my experience most psychs are of the type who like to fool themselves into thinking they understand what is going on and why. If pill X didn't work they will come up with some excuse as to why pill Y might instead. "Well pill Y does more for the cognitive side of things, it will put your mind to ease faster than pill X, it's more sedative" etc etc... They don't want to come out and admit they have no real idea. And may will never mention other therapies you should be looking into. Many will never mention about CBT, diet, exercise, talk therapy etc. They just give you your 15 mins and spin the med wheel until they hope they land on something that works.

fizzgig

(24,146 posts)
6. i quit effexor cold turkey, too
Sun Jan 19, 2014, 01:50 PM
Jan 2014

awful doesn't begin to describe it. and that was how my bipolar, i had one helluva manic episode.

annm4peace

(6,119 posts)
5. I got off Effexor XR
Fri Jan 17, 2014, 11:24 PM
Jan 2014

there is much more to this story but I'll just give how I did it. It was from info in a couple books by a couple different psych dr's and from written advice from a ret Dr who helped his patients get off their psych drugs. He also believes psych drugs have more very damaging side effects than help in the long run. His name is Dr Gary Kohls and he has some videos on youtube.

I have always been sensitive to drugs.. and after a breakdown with Severe depression/anxiety was put on on Effexor XR. my 1st time on psych drug and I was on it for 10 years before I found some help in getting off it. When I was on this drug if I forgot to take a dosage that night I would have very vivid dreams, dizziness, major headache and brain zaps.. Effexor is known for side effects of brain zaps.

before I started reducing it was recommend and I did take: 2x a day, Omega 3, vit D, vit C, B-Complex and at night 3 tablets of Magnesium. You have to take each of them because they work together.. It is nutrition for the brain. I still take them today.

Anyhow I reduced the Effexor very slowly. tapered off 250mg of Effexor over a 1 year 1/2. I decreased bit by bit and would allow about 2-3 weeks between each decrease. at the finally point I took about the 37.5 capsule and poured all the beads out and put back in so many beads.. like 60 beads, then 40 beads, then 20 beads, then 10 beads, then 5.

Doing this way I never had side effects. If you started the supplements today you would probably notice some relief.

I am seeing more and more Psych Dr.s move away from psych drugs and doing other therapies and nutrition and exercise.
but they are still the minority.

Unfortunately I stared also taking a supplement that effects the mood. 5-HTP which is natural Seratonin.. too soon after getting off Effexor. I waited 3 weeks but it was too soon.. my liver still had Effexor in it so I ended up with Seratonin Syndrome and almost died from it and ended up in the hospital. The Drs didn't know what was happening to me until is was very bad.

**** so don't take a supplement that affects the mood. or a tea or drink either. Unless you have a very good dr or nurse who knows about them. *** and they also agree the SSRI are out of your system.

I think I would have been ok had I not take the 5-HTP.

the vitamins and Omega 3 will not harm you. except if you are on a blood thinner.. omega 3 can affect the blood thinner.

Hope this helps.

the psych Dr's who wrote of a more holistic approach, they dont' say they are against drugs but that they believe in more holistic approaches.
Dr Henry Emmons: Chemistry of Joy and Chemistry of Calm
Dr James Gordon: Unstuck: Your Guide to the Seven-Stage Journey Out of Depression

there are a couple others but I can't remember their names.

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