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markpkessinger

(8,587 posts)
Mon Mar 10, 2014, 04:46 PM Mar 2014

Thanks for creating this group!

I was diagnosed almost four years ago, at the age of 49. I knew I likely had a genetic predisposition to it given my family history (my father, his father and and three out of four of his siblings, several of my mother's siblings, and (at the time) two of my three sisters (the third has since been diagnosed as a borderline case, or 'pre-diabetic.' I had pretty classic symptoms when I was diagnosed. I had noticed that my thirst had increased exponentially -- like nothing I have ever experienced -- and of course, because I was taking in such large quantities of liquid, I was getting up four or five times a night. I was familiar enough with the symptoms to have a pretty good idea what was going on, but I guess I went into a kind of denial. The thing is, despite the genetics, I guess I figured I could dodge this particular bullet because I have never been overweight and have always been fairly physically active. But sometimes, the luck of the genetic draw trumps everything else!

After this had been going on, and increasing, for a while, I ran into a friend whom I hadn't seen in about a month. The first thing he said to me was, "Mark, you look skinny, and not in a good way. You need to see a doctor!" At that point, my little denial scheme fell away. I went the following day, a Friday, to my internist. He did a quick check of my blood/glucose, and said it was in the 400s, and also drew blood for a variety of other tests. The following morning, Saturday morning, I got phone call from my internist's office. He wasn't in the office, but it was another doctor in the practice. She said they had just received my lab results, and that everything was so far out of whack they wanted me to report immediately to an emergency room. She said my blood/glucose was actually 692, and my potassium level was dangerously low, placing me at serious risk of a heart attack or stroke. I went to the emergency room at Lenox Hill Hospital here in NY (where, I must say, I received superb and amazingly prompt treatment -- I was triaged and seen by a doctor within 15 minutes of my arrival. I spent the better part of the day there as they tried to bring down my blood/glucose, and bring up my potassium.

The doctors at Lenox Hill really wanted me to remain in the hospital for a few days. But here was the thing: I am single, and have no other means of support other than myself. And I hadn't had time to check out all the ins and outs of my insurance coverage concerning hospital admissions, and didn't want to accidentally get myself into a situation I couldn't handle financially, and insisted upon going home in order to get things in order. The doctor -- a wonderful woman -- practically begged me not to leave, so concerned was she that I was at imminent risk of something like a heart attack or stroke. Although it was probably foolish of me, I insisted on leaving, but she made me PROMISE I would see my doctor first thing Monday morning. Fortunately, there were no negative consequences, and my doctor got me in to see an endocrinologist by midday Monday. He put me immediately on insulin (Lantus, a long-acting, basal insuline). As it happens, the endocrinologist's wife is a dietician specializing in diabetes, and I met several times with her as well, to help get me on the right track.

Things are more or less under control now, although it is, as Nadine says, a constant battle, and if I allow my attention to slip, can very easily (and has on a few occasions) spin out of control again.

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Thanks for creating this group! (Original Post) markpkessinger Mar 2014 OP
I concur - thanks to TreasonousBastard for putting this group together EvolveOrConvolve Mar 2014 #1
You're welcome. My story isn't as dramatic, but... TreasonousBastard Mar 2014 #2
my story is somewhat similar European Socialist Dec 2014 #3

EvolveOrConvolve

(6,452 posts)
1. I concur - thanks to TreasonousBastard for putting this group together
Mon Mar 10, 2014, 07:44 PM
Mar 2014

My story is similar to yours - are you T1 or T2 (or both)? It's only been six weeks since my T1 diagnosis, and it's still shocking to think about.

Unfortunately, I didn't really have any symptoms other than a mild increase in my fluid intake, so the doctor was shocked when my annual blood work came back with BG levels (18 hours fasting) near 500. He called me ASAP (begging the receptionist to track me down in a building with 10,000 workers), and had me come straight to his office. It was right after I'd eaten lunch which included a bunch of pasta and bread, and my BG numbers when I got to his office were around 900. My doctor's exact words when he saw the results were "holy shit".

I stayed at the doctor's office through the rest of the day and into the evening so he could monitor my BG as it got further away from lunch time. Luckily I wasn't in DKA and the rest of my numbers looked okay, so he sent me home at about 8:00 PM with a script for insulin (Lantus and Humalog). They didn't have any pens in the office, so he couldn't show me how to use them. Instead, they demonstrated the finger prick and blood testing and told me to get a demonstration from the pharmacist. Luckily, the pharmacist knew a little about how to do the injections, so he was able to show me the basics (and was also cool enough to keep the pharmacy open until I got there). I went home and figured out how to do the injections (which are far less painful than the finger pricks).

My first 14 days, my average BG was over 200, so I changed to a low-carb/high fat diet. Since then, my 14 day average has gone down and yesterday was under 100 for the first time. In some ways, I'm grateful that I'm Type1 - there's no uncertainty about it - I'm insulin dependent, and until a cure's found, I will always be insulin dependent.

TreasonousBastard

(43,049 posts)
2. You're welcome. My story isn't as dramatic, but...
Sat Mar 15, 2014, 11:00 AM
Mar 2014

also accidentally found out. Wouldn't be surprised if most of us found out "accidentally" while being checked for something else.

I was in a VA hospital for a minor procedure after not having seen any doctors for years. They tested BG and gave me the bad news, but diet and exercise would do it since I wasn't so bad.

It didn't do it, partly because I wasn't taking the program seriously enough. Eventually, a1c hit almost 14 and I'm on meds. Eventually, again, I'm on insulin because it won't go under 9.

Just had another a1c and it should better because my daily fingersticks have gone down from around 250 to around 150. Not good enough, but I still don't exercise enough.

European Socialist

(2,181 posts)
3. my story is somewhat similar
Tue Dec 23, 2014, 09:32 PM
Dec 2014

I ended up using generic insulin from Wal-mart at $ 24/vial with good results.

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