23andMe is on the brink. What happens to all its DNA data?

[Ms. Toad]

12. Two reasons my daughter did

She has a rare disease that is genetically linked, no medical treatment, no cure. They were doing a study that might lead to more data than any medical study can, because of how rare it is, how geographically separate the patients are.

She was also conceived by donor insemination, and all non-genetic means of finding biological relatives had been exhausted. Given that she has a rare disease (and another chronic disease), family history is helpful, bordering on critical. She has found her biological father (and now has full biological history) as well as a half dozen half-siblings.

And they were not free to "use it in any way." There are restrictions. We thoroughly discussed both uses and restrictions on use before she provided her DNA.