They went to a new neurologist and said they had been told to look for certain key indicators of Doose Syndrome. In May 2017, the doctor found it. By July, Wyatt began a treatment regime under the guidance of his team at Massachusett General Hospital’s Pediatric Epilepsy Program. It included medications and a medical-grade ketogenic diet in which all components must be weighed to the tenth of a gram.
By November of that year, his seizures had diminished from 200 to approximately 50 a day. By late 2018, one year later, he stopped having drop seizures with their scary falls to the ground. Wyatt no longer had to wear his helmet.
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As the days with no seizures continue, it’s possible their miracle has finally arrived. But she doesn’t want to count on that just yet. The seizures have stopped as mysteriously and suddenly as they began, and the family doesn’t want to assume Wyatt has outgrown them and that the break will continue. For now, they are being careful not to change anything about his diet or medications, because something is working, though they don’t know exactly what it is.
“It’s one day at a time,” Kristin Beauchamp said. “It’s a little akin to walking on thin ice. But this swath of time has been the greatest gift. A wonderful break. Wonderful freedom.”
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