Adenoid Cystic Carcinoma [View all]
Last edited Mon Oct 14, 2024, 03:35 PM - Edit history (2)
Has anyone had experience with this type of cancer? My son was dxed in 2016 has gone through two surgeries and two types of radiation. It has infiltrated his skull base and other critical stuctures. He received palliative gamma knife radiation last October. I do belong to the national acc group but was wondering if anyone on du had heard of this type of cancer. Also would love some healing vibes for him.
Thanks p in California
Update on my son since posting
He has had two scans that show no new progression. Has an appointment with Dr Rodrigues at Washington state in early May to see if he qualifies for clinical trials. He recently closed on a home in aberdeen wa. Five acres with a stream running through the property. His outlook is more positive in hopes of a few more years. Thanks again for all the positive vibes from this group. P
Update
Sadly my son is experiencing the same symptoms he had before his gamma knife radiation. Pain and lose of vision in left eye. He is scheduled for MRI on October 24. Need some good vibes for him. Thanks P
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