Chronic Health Conditions Discussion and Support

CountAllVotes

(21,044 posts)

16. several bouts of rather severe ON

Thu Dec 22, 2011, 02:50 AM

Dec 2011

Last edited Thu Dec 22, 2011, 11:59 PM - Edit history (1)

Two times it blinded me and I've been left with permanent visual problems (blind spots like holes in swiss cheese is how it looks). Overtime, the other eye compensates for it but it is still there.

Best things to do are:

Consult with an opthamologist to find out how extensive the damage is
Keep a chart documenting improvement (it will give you hope)
Invest in a good pair of sunglasses
Stay out of the direct sunlight
Get plenty of rest
Protect your eyes whenever possible
Stay off of the computer a lot as it puts a huge strain on the eyes

They say you go through a time when you get ON (optical neuritis) and that eventually your "outgrow it". I don't know if that is true or not as I've gone as long as 10 years between bouts of it.

It is a wicked disease that takes all it can get and gives nothing in return but a lot of people questioning you and telling you how great you look.

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recently diagnosed with MS, struggling with optical neuritis, any tips for coping? [View all] 0rganism Dec 2011 OP

I have MS too. FlaGranny Dec 2011 #1

I am curious newfie11 Dec 2011 #2

I think I was about 60 FlaGranny Dec 2011 #6

Thank you for the reply newfie11 Dec 2011 #7

Yes, I was diagnosed with an MRI. FlaGranny Dec 2011 #8

Yes you make a very valued point. Maybe it has been there but mild. newfie11 Dec 2011 #9

For 20 years I kept telling Doctors something was wrong. Downwinder Dec 2011 #10

It's A Crock ProfessorGAC Dec 2011 #18

my mother has a friend who blondie58 Aug 2012 #28

My optical neuritis symptoms were totally Downwinder Dec 2011 #3

i'm lucky it's just in one eye right now 0rganism Dec 2011 #4

Everything has been symetrical for me. If one eye is bad the other is just the same. Downwinder Dec 2011 #5

The only good thing about MS is that a lot of people are working Warpy Dec 2011 #11

Hi Warpy FlaGranny Dec 2011 #12

MS is characterized by exacerbation and remission Warpy Dec 2011 #13

Certainly, I have had proper diagnoses for both problems. FlaGranny Dec 2011 #14

sjogrens tru Apr 2012 #26

I was diagnosed with Celiac 13 years ago tavalon Jun 2013 #30

But, Not All Forms ProfessorGAC Dec 2011 #19

Sarcoidosis has been associated with celiac disease. Boudica the Lyoness Jan 2012 #20

Ah, coping..... tpsbmam Dec 2011 #15

several bouts of rather severe ON CountAllVotes Dec 2011 #16

I've Had MS for Nearly 19 Years ProfessorGAC Dec 2011 #17

I had optic neuritis back in '97,,, benld74 Apr 2012 #21

update 0rganism Apr 2012 #22

Glad To hear It ProfessorGAC Apr 2012 #24

Please try coconut oil! jxnmsdemguy65 Apr 2012 #23

Not all optic neuritis is MS. I had optic neuritis during a case of rat bite fever McCamy Taylor Apr 2012 #25

Dr. Terry Wahls sense Jun 2012 #27

Immune Disorders MysticLynx Sep 2012 #29