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OnionPatch

(6,273 posts)
10. I'm sorry you've suffered from this for all this time.
Wed Feb 22, 2017, 01:49 AM
Feb 2017


I've heard of other people who have suffered from this for many years and have tried everything. I've also heard of people who were "cured" using various means, including chelation therapy or ridding themselves of viruses/pathogens, or cutting out certain foods, but obviously these don't work for everyone. This seems like such a complex condition. I wonder if there aren't many different possible causes for this group of symptoms, including some yet to be known.

I'm thinking of being tested for heavy metals because I have tremors and muscle twitches, which I read are symptoms of mercury toxicity, and I've had exposure. Were you tested for heavy metals? What sort of chelation did you have?

So glad for you that you finally got SSDI. I hear it usually takes several attempts. I'm only about five years from retirement and my symptoms aren't debilitating. I'm lucky to work a desk job with a somewhat flexible schedule so I'll keep going unless I get worse. Let's hope they make some big strides toward understanding this soon, and if not a cure, then better treatments.

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